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Invisible Care Is Still Care

Family

Invisible Care Is Still Care

DJ is nine years old and loves music, coloring, bubbles, balloons, swimming, games, and going to the movies with his family. His parents, Devin and Shawntel, share how his communication and support needs have shaped their family’s life, and why they are advocating for meaningful paid caregiver support.

Angel Heaven Lee

Self-Advocate

The Power of Lived Experience: Why Self-Advocates Must Be at the Center of Decision-Making

Angel Heaven Lee is a self-advocate who explains why people with disabilities must be meaningfully included in the decisions that affect their lives. Drawing from her own experience navigating accessibility, healthcare, employment, transportation, and public spaces, she makes the case that lived experience is expertise.

Anastasia Ford

Disability Advocate | Homeschooling Parent

Disability Rights, Inclusion, and Why Advocacy Must Continue

Anastasia Ford is a disability and human rights advocate, activist, parent, and homeschooling parent who calls for disability rights to be recognized as human rights. Her story focuses on community inclusion, sustained support for disability advocacy, and the responsibility to keep advocating for future generations.

Ariel Mundy

Vice President, Self-Advocacy Fighters | Self-Advocate

Advocacy in Action

Ariel Mundy is a self-advocate and community leader from Aiken who believes people with disabilities should have an active role in decisions about where they live, work, worship, participate in the community, and what they want for their lives. She shares how leadership training and connection with other advocates have strengthened her voice and ability to support others.

Miranda Harris

Founder | Parent Advocate

More Than Just a Mom: Putting Special Education on T.R.A.C.K.

As a parent advocate, Miranda Harris is calling for stronger special education through better training, accountability, collaboration, and a commitment to inclusion.

Justin

Family Story

When a Crisis Happens, Families Need More Than Promises

After Justin’s mother died unexpectedly, his family discovered how difficult South Carolina’s disability service system can be to navigate during a crisis. His story highlights the need for clear information, consistent communication, and planning before families are faced with an emergency.

Kim Brock

Advocacy Influencer | Self-Advocate

Using Your Voice: Advocacy, Accessibility, and Living Fully

Kim Brock is a mother, disability advocate and woman with cerebral palsy who shares what accessibility, personal care services and community-based supports mean in everyday life. Her story is a powerful reminder that access is directly connected to independence, dignity and full participation in the community.

Kallyn Long

Youth Self-Advocate

There’s Ability in Every Disability: Youth Advocacy and Access in Education

Kallyn Long is a youth self-advocate, author and student who shares her experience becoming single-sided deaf and learning to navigate school, testing accommodations and everyday life with a hidden disability. Her advocacy focuses on fair access, inclusion and making sure young people with disabilities have the opportunity to be heard.

Dr. Morelisa Sabb-Cordes

Master IEP Coach | Independent

Help! I Am Attending an IEP!

Dr. Morelisa Sabb-Cordes is an IEP advocate and coach who helps families understand their rights, navigate special education meetings, and advocate for meaningful educational progress. She calls for stronger funding, training, oversight, and accountability so the promises made through an IEP are carried out in practice.

Robert Hinson

Brain Injury Survivor | Self-Advocate

The Power of Support: Why Groups Matter!

Robert Hinson is a brain injury survivor and self-advocate who shares how peer support helped him connect with others who understand the realities of brain injury and recovery. His story shows the importance of lived experience, friendship, connection, and knowing you are not alone.

PJ's Story: When Disability Supports Become a Lifeline for the Whole Family

Parent Advocate | Family Caregiver

Keeping Families Together: The Lifeline of Home and Community-Based Supports

Pam shares nearly two decades of raising her daughter PJ and the exhausting reality of fighting for nursing, respite, therapy, equipment, Medicaid waivers, and the supports that keep families together.

Amanda

Self-Advocate

Independence Shouldn’t Depend on Finding Enough Support

Amanda shares how limited personal care supports, inaccessible housing, and low wages for caregivers can make independence much harder for people with disabilities.

Melanie & Will Cason

Family Advocate

Families Should Not Have to Choose Between Safety and Proximity

Melanie Cason shares her family’s experience navigating decades of disability services, caregiving, waiting lists, and limited community-based options for her son, Will. Their story shows why families need meaningful supports close to home, not choices that separate people with disabilities from the communities that know and love them.

Donovan Ford

Youth Self-Advocate

Autism Is a Part of Me. I Got This!

Donovan Ford is a youth self-advocate who shares a simple, confident message about autism, communication and leadership. He reminds others that different ways of looking, listening or responding do not mean someone is not paying attention, participating or capable.

Chelsea Mayne

Self-Advocate

Challenges in Holding a Job When You Have Autism

Chelsea Mayne is a self-advocate who shares how traditional hiring practices, interviews, workplace expectations and inconsistent accommodations can create barriers for autistic and disabled job seekers. She calls for employers to focus on ability rather than social style and to provide fair, lasting opportunities to succeed.

Margaret Janse van Rensburg

Assistant Professor | Self-Advocate

Nothing About Us, Without Us: Who Gets to Shape Disability Research?

As a self-advocate and researcher, Margaret Janse van Rensburg believes people with disabilities should help shape the research that affects their lives.

Joyce Davis

Executive Director | Disability Advocate

What’s in a Name? Making Sure People Don’t Get Lost in the System

Joyce Davis explains why the words used to describe disability services matter, and why people with traumatic brain injury and spinal cord injury must not get lost when state systems and agency names change.

Yvette & Rich

Family Advocates | Aging Caregivers

Planning for the Future: The Reality Facing Aging Caregivers

After a lifetime of caregiving, Yvette and Rich share the fear many aging parents face: what will happen to their adult child with a disability when they can no longer provide care?

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