Key Federal & State Advocacy Initiatives
Disability rights are civil rights.
The Americans with Disabilities Act (ADA) prohibits discrimination and ensures access to jobs, schools, transportation, and public life. Landmark decisions like Olmstead v. L.C. affirm the right of people with disabilities to live and participate fully in their communities — not in isolation.
People with intellectual and developmental disabilities (IDD) want what we all want: the chance to live, learn, work, and contribute. Public policy is key to making that possible.
That’s why The Arc and our national partners work together to shape and protect strong federal policies that promote inclusion, access, and opportunity.
Medicaid Policy Issues Disability Advocates Are Watching in 2026
Medicaid plays a critical role in supporting people with intellectual and developmental disabilities across South Carolina.
In addition to providing health coverage, Medicaid funds services that allow many individuals to live independently and participate fully in their communities. These services include home and community-based supports, personal care assistance, and other long-term services that help people remain in their homes rather than institutional settings.
Across the country, disability advocates are closely watching several Medicaid policy discussions that could affect coverage and services in the coming years.
These include:
Eligibility and documentation requirements
Some states may increase verification requirements or documentation reviews. While intended to strengthen oversight, these changes can sometimes lead to eligible individuals losing coverage because of administrative challenges or paperwork barriers.
Retroactive coverage protections
Retroactive eligibility allows Medicaid to cover medical bills incurred before someone’s application is approved. Changes to this protection could leave families responsible for significant medical expenses during the application process.
State budget decisions affecting services
Medicaid programs are jointly funded by federal and state governments, and state budget decisions play a major role in determining what services are available. Budget pressures can sometimes lead to discussions about limiting optional services, including some home and community-based supports.
Why this matters in South Carolina
The South Carolina General Assembly is currently debating the state budget. Decisions made during this process can affect services relied upon by many individuals with disabilities and their families.
The Arc of South Carolina works to ensure that the voices of people with intellectual and developmental disabilities, their families, and advocates are included in these important policy conversations.
Take Action
Advocacy makes a difference. When policymakers hear directly from individuals and families, it helps them understand how these policies affect real lives.
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